City2Surf 2018

Join Team FightMND in Sydney’s City2Surf, Sunday 12 August 2018.

For the first time ever, Team FightMND have entered Sydney’s City2Surf. You’re invited to take part and help us raise funds and awareness for FightMND.  Join our Patron Neale Daniher and Team FightMND and help us raise awareness and funds for vital research into finding a cure for Motor Neurone Disease (MND).

Step 1.

To Join Team FightMND and set up a fundraising page:
Step2. 
To register in the City2Surf:

All Full!!!!!!

Be a FightMND Superstar!

We have 50 VIP Superstar spots in City2Surf 2018, if you think you can raise a minimum of $1000 – then apply now!

Superstar Benefits

FREE ENTRY into City2Surf 2018

  • Starting at the head of the pack Superstar start zone ensuring you can really go for a new personal best time.
  • Your own FightMND Running singlet to train and run in
  • Personalise race bib with your name
  • Fundraising medal for those who raise over $1000
  • Training guide
  • Free event day race photo
  • One-to-one continuous fundraising support from the FightMND team
  • Opportunity to feature on FightMND’s social media sites.
  • A sense of team spirit as you unite people living with MND
  • Event day assistance and support from FightMND staff and Ambassadors. And more!

Join us in the fight against Motor Neurone Disease (MND) and join Team FightMND in Sydney’s City2Surf. We lead the fight against MND with strength, spirit and fun.

For more info about Team FightMND or City2Surf please contact

Anna Skelton

Fundraising and Communications Coordinator

[email protected]

m: 0404 940 023

Drewett joins the race to find a cure

Alice Drewett, the daughter of former Australian tennis star, global tennis administrator and MND sufferer, Brad Drewett, explains her and her family’s experience with Motor Neurone Disease. Alice took some time to speak to us before competing and raising funds for FightMND in the iconic City2Surf in Sydney on August 12.

‘Team FightMND’ has raised over $48,000 to help fund world’s best practice in research and trials by Australia’s brightest and best researchers and clinicians to find an effective treatment and cure for MND.

You can support ‘Team FightMND’ by donating to the superb team who will be pounding the pavement for the 14km run between the Sydney CBD and Bondi Beach on August 12.

 

“That was the first I’d ever heard of it.” 

This is how Alice Drewett recalled the moment in 2013 when she and her three brothers were told that their father, Brad had been diagnosed with Motor Neurone Disease (MND).

“The hardest part was getting a diagnosis without any hope behind there being a cure, that was my initial experience and recollection of the diagnosis of MND,” Alice said.

Former Australian tennis player and head of the ATP, Brad Drewett was diagnosed with MND in December 2012 and lost his battle less than six months later, on May 3, 2013, at just 54 years-of-age.

The average life expectancy of someone with MND is 27 months following diagnosis.

“When someone is sick like that, especially someone so close to you, you look for hope and something to cling onto even if it is not very realistic. I think that glimmer of hope really helps and is what gets you through, but I found that because there is no cure (for MND) and there were no stories of anyone surviving, finding that hope was initially quite hard.

“I guess after the first week or two, you build your own emotional hope in your head and I probably pushed through that then held onto the hope that people who are diagnosed with Motor Neurone Disease usually have anywhere from 2 to 5-years to live, so in my eyes I was thinking that’s ok, at least we’ve got to 2 to 5-years with Dad, and you never know what cure or treatment they might find during that time.

“It was then unfortunate for our family that Dad passed away only a few months after diagnosis, he deteriorated quite quickly,” Alice said.

For the two-time Australian Open junior champion, his condition declined in such a way that he was able maintain mobility and communicate in writing until his passing, despite the disease taking away his speech.

“He was always able to walk and always able to use his hands all the way up until the day he died,” as Alice relives the disease’s progression

“It (MND) took him from the top down, it was his airways, his breathing and his ability to speak that deteriorate first from the time we found out.

“He continued to work as President and Executive Chairman of the ATP, almost up to the day he died because he still had the ability to use his brain and his hands, so he could still be on emails and still be texting,” she added.

Alice cites her connection to Tennis, through her father’s lifetime involvement, as the reason why she became aware of FightMND, and ultimately why she is running in ‘Team FightMND’ in the City2Surf in Sydney on August 12.

“FightMND came to my attention in January when they started doing different activations at the Sydney International, and the link between tennis and FightMND actually popped up in a Google search I’ve got set-up for my Dad’s name.

“I hadn’t looked too much into different Motor Neurone organisations and how I could help or get involved but that wasn’t to say I wouldn’t be open to the opportunity.

“I flicked them (FightMND) an email and said I’ve just read about you guys and if there is anything I can do to help, whether that just be the City2Surf run or if you want to use me in a greater capacity, just sign me up and I’d love to help,” Alice said.

In a further expression of solidarity and support from the tennis fraternity to fighting Motor Neurone Disease, Tennis NSW CEO and Sydney International Tournament Director, Lawrence Robertson, is also joining ‘Team FightMND’ in Sydney’s most iconic fun-run.

“I wouldn’t call myself a runner, I have done two 10km runs before a couple of years ago and I do go for runs but it is my first time doing the City2Surf,” Alice said.

“I’ll be running as part of ‘Team FightMND’ and have a couple of friends and family who will definitely be there at the finish line cheering me on and to celebrate when we make it through the finish.”